Date updated: 5/7/2012
Age: 15
Diagnosis: Cp
Current email address: Icarrol@yahoo.com
Update: The account number to help with funeral and
medical is arvest 0048708429
Elizabeth S
Date updated: 5/14/2012
Age: 15
Diagnosis: different
Current email address: muffin0033@yahoo.com
Update: Elizabeth turned 15 May 4 Her 8th grade graduation is coming up on June 8 She has appts at the hospital May 21 She doing pretty good some ups and downs I'll post after her appts. Thank you
Emalee K
Date updated: 5/1/2012
Age: 5
Diagnosis: stage 4 neuroblastoma
Current email address: kayleebryn@verizon.net
Update: Emalee recently celebrated her 5th birthday and had an amazing week full of fun at home with family and friends!Thank you to everyone who sent her cards in the mail....she loved them all! She is still getting lovenox injections for her blood clot and she just had her first MRI without sedation yesterday, which she did wonderful with, to check if its working! Please pray for good results!
Emery B
Date updated: 6/3/2010
Age: 5
Diagnosis: lung transplant-rejecting
Current email address: threeglittergirls@yahoo.com
Update: Emery is enjoying summer with his 3 big sisters. He started on some new medications that seem to have slowed the progression of his lung rejection. He is talking more, and eating by mouth better too!
Emilio R
Date updated: 2/13/2012
Age: 7
Diagnosis: acute Lymphocytic Leukemia
Current email address: mireyasol@comcast.net
Update: Emilio is doing well. In remission and recovering from
side effects. He is happy to only go to cancer clinic
once a month. Will be "graduating" soon from Hugs
and Hope!
Emma
Date updated: 9/28/2011
Age: 10 years
Diagnosis: SMA type 1
Current email address: bethml@fuse.net
Update: Emma has had a busy summer. She went to see Big Time Rush and New Hollow concert 2 times. She really loves her music right now. She has been healthy and doing well. Thanks!
Eric A
Date updated: 4/2/2012
Age: 9
Diagnosis: Cystic Fibrosis
Current email address: Emilyspeanut@aol.com
Update: Eric has been doing well recently. He still
continues to struggle with coughing and mucus
but he is a trooper and will not let this get him
down!
Ethan S
Date updated: 7/25/2011
Age: 9
Diagnosis: dandy walker malformation
Current email address: mamastirls25@yahoo.com
Update: Ethan is doing well, he could use some happy mail as scott and i have seperated and he is having a hard time adjusting , Dalton is coping better but i think that is because he is a bit younger, the boys are having fun this summer and are looking forward to school this fall
Eva Paige S
Date updated: 2/10/2012
Age: 4
Diagnosis: Global developmental delays, seizures, microcehaplic, etc
Current email address: angiescotto@yahoo.com
Update: Eva is currently in the hospital with a
very high fever and respiratory issues. we
were blessed in having 8 months for
hospital free time so w I guess we were
due. she has made great progress verbally
though!
Hosanna B
Date updated: 10/14/2009
Age: 10
Diagnosis: Neuroblastoma
Current email address: merryharts@peoplepc.com
Update: Hosanna is doing great. She seems more active than usual lately, trying to talk and smiling a lot.
Jacob S
Date updated: 8/13/2010
Age: 8
Diagnosis: spina bifida, brain damage
Current email address: my3sonshines@centurytel.net
Update: Jacob celebrated his golden birthday on the 8th. Summer school just ended, which he really enjoyed. Medically, Jacob is doing amazing. He will be having botox at the end of the month.
Jasmin M
Date updated: 6/6/2010
Age: 8
Diagnosis: CP, Microcephelaly
Current email address: mr_mcwilliams@hotmail.com
Update: Jasmine is doing well and has been enjoying the school year. She is looking forward to her 9th birthday coming up in August. She enjoys listening to the radio and playing with her light up and musical toys. She is taking more of an active role in attempting to stand which has received much praise from her therapist.
Jennifer S
Date updated: 8/24/2010
Age: 6
Diagnosis: Myopathy, Failure to Thrive
Current email address: melcody2003@yahoo.com
Update: Jennifer is doing fantastic with eating and gaining weight lately! She is now diagnosed with PICA (eating non-edible objects). This may be due to an anxiety disorder and obsessive compulsive disorder. Going to be starting with a new therapist to help with these issues. She starts kindergarten soon, hoping it is a smooth transistion for her!
Joanna S
New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child New child, new child -- new child
Jonathan A
Date updated: 12/14/2009
Age: 16
Diagnosis: brain injury, epilepsy
Current email address: jofodo@comcast.net
Update: Jonathan has been enjoying the Christmas season at home and going to parties. We have put Jonathan on a new medication which helps some but causes some behavior problems; we are now trying to monitor and adjust his medication. Jonathan really looks forward to receiving Hugs and Hopes mail; it brightens his day!
Jonathon W
Date updated: 9/23/2011
Age: 16
Diagnosis: Unknown Genetic Syndrome, development and growth delays, pto
Current email address: ladykissendyl@comcast.net
Update: GRADUATE: SEPTEMBER 2011
Both Jonathon and Alexander are doing medically well. Neither have seen a Dr in some time and have been staying healthy. SO much in fact that I have
gone back to work full time. I feel the time is right for them to graduate from Hugs N Hope. Once again thank for all your kindness over the years.
Jordan Michael H
New child - New child - New child - New child -New child - New child -New child - New child -New child - New child -New child - New child -New child - New child -
Joshua A
Date updated: 12/21/2010
Age: 12
Diagnosis: Acute Lymphoblastic Leukemia
Current email address: b9stome@aol.com
Update: Joshua will be seeing the doctor on
Tuesday the 21st of December. He has
has a cough over and over again, he has
been on antibiotics every other month.
While he is on them he doesn't cough at
all, but once off for about a week he's
back coughing. I'm not sure what they
will want to do this time. The last
time he was at the doctor they said
maybe he had bacteria in his lungs.
Josh W
Date updated: 8/2/2011
Age: 14
Diagnosis: ROHHAD
Current email address: joshuaalanw@yahool.com
Update: Josh's health has been pretty stable lately, using his ventilator and diaphragm pacemakers, growth hormone & testosterone injections, etc. He has enjoyed the summer, sleeping later and going to the movies with his day nurses. During our short family vacation, he even got to go to the coast and fish! He looks forward to his last year in junior high school, which starts in less than 3 weeks!
Julianna Elizabeth R
Date updated: 5/2/2012
Age: 7
Diagnosis: mitochondrial disease
Current email address: nena1294@aol.com
Update: Hello,
Julianna had a visit with her nueromuscular and neurologist. She now has an additional diagnosis of neuropathy.Thank you for your continous letters and support.
Tired but Faith filled.
Millie Julianna's mommy
Kady L
Date updated: 6/9/2010
Age: 12
Diagnosis: Glutaric Acidemia
Current email address: teach1970@hotmail.com
Update: Kady had a couple of low blood sugars in April that put her in the hospital, but all in all, she's doing pretty good. The doctor's are wanting to do another eye surgery (update to come). She would like everyone to know that she is one of only THREE students in her class with a 4.0 GPA. She has overcome many obstacles that the doctors said she wouldn't be able to do!!! I'm a proud mom! THANKS!
Kaitlyn C
Date updated: 12/8/2011
Age: 15 years
Diagnosis: Brain Tumor
Current email address: erkellyc@yahoo.com
Update: Kaitlyn is currently in the hospital in
Milwaukee. looking at another possible
brain surgery.
Kaitlyn Marie S
Date updated: 3/29/2012
Age: 14
Diagnosis: Double Heart Transplant
Current email address: karatemom05@frontier.com
Update: Kaitlyn is doing well and is taller than Mom now! Her heart function remains strong and unchanged from the day she received the gift--almost 10 years ago! Thank you for the mail. Kaitlyn has been trying to write you all back! :)
Kaitlyn Rebekah M
Date updated: 1/4/2010
Age: 16
Diagnosis: Common Variable Immune Def
Current email address: xan86@bellsouth.net
Update: Kaitlyn has had a good winter so far. She is still doing her weekly chemo treatments and is in 10th grade. She has her drivers license and is taking her second year of Spanish. She goes back to the doctor on Jan. 26th and for more blood work. Thank you for ALL the Christmas cards and Birthday cards!!!!
Happy New Year!!!!!!
Karly Z
Date updated: 6/9/2010
Age: 15
Diagnosis: epilepsy, ovarian cancer
Current email address: silentlyeating@gmail.com
Update: Graduate - June 2010
Katia S
Date updated: 4/29/2012
Age: 12
Diagnosis: leukemia AML/ Chronic Graft vs. Host disease
Current email address: tmsol87@aol.com
Update: This is a message to thank each of you
for continuing to follow Katia, sending
cards of encouragement. We have told
Katia over the years how priceless
prayers are and the fact someone is
thinking about her, takes the time to
write a note, or a card, puts it in the
mail is just beyond kindness. I just
updated her website. Thank you! Tracy
(Mom)
Katie J
Date updated: 1/28/2010
Age: 9
Diagnosis: cerbral palsy,hydrocephlis
Current email address: rose003002@yahoo.com
Update: katie is in the process of getting a speech machine(called a dynovox). she loves learning how to use it(she loves all things computer). it has already helped increase her vocabulary.she had begun to pull her hair out,maybe sensory imput but we think mostly from fustration. the drs. and speech therapy hope the easier it becomes for her to communicate the less "melt downs" she will hopefully have.
Keegan K
Date updated: 9/5/2011
Age: 4
Diagnosis: Eosinophilic Esophagitis, Arachnoid Cyst of Brain, Clubfeet
Current email address: shaykyle528@yahoo.com
Update: Keegan is hanging in there. He has had an eventful Summer, He had dental surgery in June due to damage from reflux, He also had fenestration of his brain cyst. In two weeks he will be going back for a 6th relapse in his clubfeet, cating and a wheelchair are in his future. On a positive note, He is starting school On Sept 6th!
Kevin W
Date updated: 11/17/2009
Age: 11
Diagnosis: Heriditary Spherocytosis
Current email address: ncmommy72@aol.com
Update: Kevin is doing well. He might have to go on medication for his ADHD. Its interfering with school.
Kimberley G
Date updated: 2/9/2012
Age: 18
Diagnosis: cp seizures
Current email address: geislermom@hotmail.com
Update: Wish this update was better news. The end of December and Jan. Kimmie was in the hospital for high sodium lvls. and seizures. When we came one in Jan. it ws under hospice care.
Kody C
Date updated: 11/2/2011
Age: 9
Diagnosis: Hemimegalencephaly
Current email address: Kassieandkodytwins@yahoo.com
Update: Kody is still trying to get back to how he was
before his last hip surgery. He is still working on
balance and walking and learning how to talk
clearer. He is excited about his birthday and
Christmas coming!!
Latosha S
Date updated: 2/7/2011
Age: 16
Diagnosis: bardet biedl
Current email address: pamelasullens@yahoo.com
Update: latosha is having a surgery on wednesday 9 of this month and she hope not she have caner after the surgery,she need praying, she like justin bieber.
Lauren W
Date updated: 5/15/2012
Age: 16
Diagnosis: rett syndrome
Current email address: Softbreezes60@aol.com
Update: Lauren overall has been doing well. She
continues with allergy problems and congestion.
She is looking forward to spending time outside
during the warmer months. Thank you so much
for all her happy mail she truly loves so much.
Lisa B
Date updated: 5/11/2012
Age: 9
Diagnosis: 3 open heart surgs./2 strokes
Current email address: betpj@aol.com
Update: Lisa will be admitted to the hospital Mother's Day.
She will have surgery on May 15. We will be
inpatient again for approx. 9 days. She is having
eye muscle problems, diagnosed with hypertension,
has required bone scans due to multiple fractures,
is having nutritional issues and migraines. In spite
of all of her health problems, she is the happiest,
bravest, sweetest person I know.
Luke T
Date updated: 4/18/2012
Age: 5
Diagnosis: PKU, Chiari, EDS, Osteoporosis, asthma
Current email address: 8teats@atlanticbb.net
Update: Thank you for all of the wonderful happy mail Luke has been receiving.It truly brightens his days.Luke is having many problems with his walking due to EDS issues and is awaiting a new wheelchair.His PKU levels have been high and overall he just isnt feeling well. Please continue to keep Luke in your prayers. Hugs, Pam
Maddison W
Date updated: 5/2/2012
Age: 12
Diagnosis: ewings sarcoma
Current email address: haws_2@msn.com
Update: Maddy is currently 8 years in remission!!!! She is doing great in school, loving life and looking forward to a long healthy life!
Matthew C
Date updated: 5/2/2012
Age: 7 1/2
Diagnosis: Mitochondrial disease
Current email address: tlcech@charter.net
Update: Matthew's testing showed that his stomach is basically not functioning at all. He is 100% feed through a Jtube place in his intestines. He still has a gtube in his belly that drains out excess fluids. He is allowed to eat lollipops and gum and little sips of juice and water. He continues to have fluid issues along with other lab imbalances and goes for weekly labs. We will follow up soon in Boston
Mattie L
Date updated: 3/14/2012
Age: 11
Diagnosis: Mitochondrial Myopathy Klippel Feil
Current email address: shellyplus4@gmail.com
Update: Mattie will be having surgery 3/16/12 to place a port a cath.
Maurquez Devynn T
Date updated: 5/2/2012
Age: 7
Diagnosis: A.L.L.
Current email address: furtilemom@yahoo.com
Update: Q is doing quite well.He had a repeat/update MRI on 04/26/2012--PRAISE GOD!!!Looked great!He now weighs 71 pounds.Counts great, appetite great! Thanks for all the mail.Q has been blessed to have received so much mail; we're still opening mail from Dec. 2011. Shouts out 2 Ms. Dot,the kids in Mn,the churches in MN(boy MN-yal shole know how to love) our loved ones in New Zealand, KS,GA,FLA,ALA,TN,KY.
Maya O
Date updated: 4/1/2012
Age: 13
Diagnosis: mitochondrial disease
Current email address: mom2maya@centurytel.net
Update: Maya's been doing well. She was in the ICU in
February after having her tonsils removed for sepsis
and a J-tube issue, but has been enjoying our early
peek at spring ever since. She LOVES her mail and
wants to say THANKS!
Melorah M
Date updated: 5/3/2012
Age: 11
Diagnosis: Dravet Syndrome
Current email address: mcmahanj@mac.com
Update: Melorah is having a few more seizures due to a medicine change. We are working through that right now. She will be having more testing as the doctors also think she has Ehlers-Danlos Syndrome since Amelia was just diagnosed with it. She LOVED all the Easter cards!!! Thank you!!!
Michael H
Date updated: 6/12/2011
Age: 10
Diagnosis: ROP (blind) sensory integratio
Current email address: cheerprincessmom@gmail.com
Update: Michael had started doing pretty well and then started having problems at school. He was getting in trouble for laughing out loud and straing into space....something he has done since birth and has no control over. He just under went an EEG test to rule out Gelastic seizures but everything was normal. So we are still at a stand still.
Nate H
Date updated: 12/2/2009
Age: 7
Diagnosis: EGID amoung others
Current email address: ashlie.perry@charter.net
Update: Nate is still recovering from Pnemonia as a result from H1N1. He's also going through his first Christmas without his parents being together. Please pray that he continues to recover and that he has a Merry Christmas.
Love,
Ashlie
Nate's Mom
Nicholas L
Date updated: 9/28/2011
Age: 9 years
Diagnosis: SMA type 1
Current email address: bethml@fuse.net
Update: Nicholas has had a great summer with camping, playing games, playing Miracle League baseball and power soccer. He has been doing well. Thank you!
Nicole T
Date updated: 4/2/2012
Age: 13
Diagnosis: Hydranencephaly
Current email address: rtrease@nntc.net
Update: Nicole continues to deal with a respiratory infection that has been causing an increase in secreations. She was recently hospitalized for 2 weeks after testing positive for a Corona virus. She received IV antibiotics and was sent home to recover. It has been a long month... Please remember her in your thoughts, prayers and random acts of kindness shown to our family.
Peyton H
Date updated: 10/21/2011
Age: 7
Diagnosis: Leukemia
Current email address: navaraf@aol.com
Update: Peyton has been in remission since about six weeks post diagnosis, so she has been "clean" for over a year. Peyton is doing well right now and LOVES getting happy mail. All the cards, letters, and pictures have been a real blessing.
Rebecca B
Date updated: 7/12/2010
Age: 8
Diagnosis: Batten's Disease
Current email address: qajchook@gmail.com
Update: Just wanted to let you know that Becca passed away this evening (7:11PM, 7/11/2010) surrounded by the whole family. We could not have asked for a more peaceful death.
Love,
Lisa
Robert E
Date updated: 4/30/2012
Age: 12
Diagnosis: Mitochondrial Myopathy,Epilepsy
Current email address: wjjrfl@gmail.com
Update: Robert was very sick with the flu and pneumonia. He's doing much better and is back to therapy and able to do his school work again. He will be going this week for an ultrasound of his kidneys. Thank you all for the beautiful cards.
Ryan B
Date updated: 3/1/2011
Age: 14
Diagnosis: Spinal Muscular Atrophy
Current email address: loraberhar@yahoo.com
Update: Ryan is doing well. He is currently a freshman in highschool. Please keep him in your prayers as spring is usually a rough time for him. He seems to get sick the most in spring time!
Sarina S
Date updated: 3/22/2012
Age: 15
Diagnosis: Hodgkin's and many others
Current email address: cloudraven@verizon.net
Update: Been a hard few weeks for Sarina. She is getting hearing aids, glasses and braces. She is not too happy about any of them. Breanna is still having some passing out spells inschool. New heart medication is helping.
Savannah R
Date updated: 9/16/2011
Age: 18 yrs.
Diagnosis: Cystic Fibrosis
Current email address: youthful64@aol.com
Update: Thank you to everyone who remembered Savannah's B day.
Savannah was admitted to the hospital Sept. 13th with a lung infection.
Thank you for all the continued support.
Take Care,
Julie (Savannah's Mom)
Shelby T
Date updated: 5/4/2012
Age: 19
Diagnosis: cp, nbra
Current email address: sassylg73@yahoo.com
Update: Shelby has been pretty good she sits up n her
wheelchair for an hour or 2 a day, she smiles
more now and laughes at us she's even trying to
get out of bed at nite.
Sierra Journey F
Date updated: 11/22/2011
Age: 10
Diagnosis: SMA,Kidney & Lung Disease
Current email address: pixiechick1414@gmail.com
Update: Sierra is just about 3 months post surgery
and is doing wonderful except she is not
fully back in her own wheelchair just yet
.. still needing encouragement for her
mobility again but she is still doing so
good! Happy Holidays!
Sydney N
Date updated: 12/6/2010
Age: 9
Diagnosis: Dravet syndrome
Current email address: hopeforsydney@hotmail.com
Update: Sydney has had terrible month, her school IEP was violated and they put her on teh 8 foot monkey bars, she fell off and broke her shoulder in a way that it can not be casted, so she has been completely sedated since Nov 9 trying not to have seizures so her bone can heal....she missed all of thanksgiving, I just hope she does not miss Christmas!!!I hope that she does not regress too much!luv mial!
Tabitha M
Date updated: 6/6/2010
Age: 8
Diagnosis: CP, Hydrocephalus
Current email address: mr_mcwilliams@hotmail.com
Update: Tabitha has been doing well in school and has graduated to the third grade. She has been making monthly trips to Columbus to keep an eye on her shunt pressure and has been stable since April. She has been enjoying the school days but is happy to see summer come and she will soon be out in the pool splashing up a storm. She is looking forward to her 9th birthday in August.
Test T
Date updated: 12/9/2011
Age: 7
Diagnosis: asd;lkjads
Current email address: as;dlkfj@as.com
Update: ;akjsd;kajsdf
Thomas G
Date updated: 12/14/2011
Age: 16
Diagnosis: bethlem myopathy
Current email address: faithtofaith@hotmail.com
Update: they still havent started thomas' pool therapy,but friday we go back to houston doctor so hopefully they will get it going.He has AFO's for his legs now,its the kind you sleep with,of course not to walk in cause he still isnt standing or walking
Tiara Marie B
Date updated: 9/2/2011
Age: 15
Diagnosis: diabetes type 1, uncontrolled sezure disorder
Current email address: cuddlebugzx2@aol.com
Update: Tiara had a pretty good summer. She spent a lot of time camping with her family since we were camp host for 2 1/2 months. Her blood sugar numbers have slowly been coming down. She has been doing alot better remembering to check her blood sugars and taking her insulin. She is going in to the 10th grade this year and she is looking forward to a new school plan with a new smaller school one on one.
Tyler T
Date updated: 12/1/2011
Age: 11
Diagnosis: rhabdomyosarcoma stage4
Current email address: turpin10648@gmail.com
Update: Hello,
Tyler is doing well, he sees Dr. Rodriguez tomorrow and if he says
that it’s okay, we will go home on Friday. Tyler’s really wanting to
be home. He’s still on a lot of pain medication. We will take Tyler
home and try to make things normal for him. He will get to spend
Christmas with his brothers and Nathan.
Zachary T
Date updated: 8/17/2011
Age: 13
Diagnosis: Duplication 15q Syndrome
Current email address: BrightIs7331@msn.com
Update: School starts next week. Zachary's seizures
seemed to be under control. His Autism
chararistics are becoming more apparent. He
hardly goes out into public now.
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