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Nicole is one of five siblings. She was adopted by her
parents.
Nikki functions at the level of a
baby. She's not able to walk or move about, and she has
seizures several times a day. She's also blind.
Hydranencephaly
indicates that a child is missing much or most of their brain.
It is a condition in which part of the brain mantle (cortical plate
and hemispheric white matter) has been damaged, liquified, and
resorbed. It can be caused by exposure to drugs or infection before
birth. Less than fifty percent of babies born with the defect
survive; and of those, most don't live past one month.
Nikki's had many surgeries and receives botox injections for tight
muscles.
Many gifts which are normally appropriate for a a pre-teen girl
would not be useful for Nikki, but she does enjoy music and
videos she can listen to.
Nikki was first featured on the Hugs and Hope web site back in
2006. We are "re-featuring" her this month because she's had a
rough year and could use some extra T.L.C. So let's cheer her
up! And don't forget her sisters! They could use
encouragement as well, since their sister gets a lot of the
attention and they must spend a great deal of time in hospitals
entertaining themselves while mom attends to Nikki.
For email and snail mail addresses, personal web site URL, medical
fund information, and a current list of all three girls' interests and hobbies, visit
our "Kids List" page.
For CURRENT UPDATES visit our updates
page.
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