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MAYA O

Date of Birth: December 12, 1998

Main Diagnosis:
Mitochondrial Disease

Featured on: August 2003

Parents: Holly

Siblings: none


Maya's disease is genetic. It affects all systems of her body as well as the way her body makes and uses energy. She has difficulty with balance and communication and sometimes needs assistance walking. She is also hearing and visually impaired; and she has suffered strokes.

Maya lives with several issues, including a tube in her stomach for venting, another tube in her small intestine for medication, and a central line for receiving nutrition through a vein in her chest.  Maya also has an ileostomy, since she had her colon removed, and a vesicostomy, so she can use a catheter through a hole in her belly.  She has neuropathies, seizures, and an immune problem for which she receives IV infusions every three weeks.  She needs blood transfusions frequently also. 

BUT, in spite of all this, Maya still loves to play and laugh.  And Maya's mom says "She's never met a person she couldn't make smile!"

For email and snail mail addresses, personal web site URL, medical fund information, and a current list of interests and hobbies, visit our "Kids List" page.

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