Date of Birth: 4-28-00
Diagnosis: Klippel Feil Syndrome
Featured on: June 2004
Parents: Stephen & Shelly
and James (1-22-02)
Mattie was diagnosed with Klippel Feil
Syndrome at six months old. She also has unilateral hearing loss, and wears a hearing aid.
Mattie had spinal surgery at the Shriners'
Hospital in Philadelphia. Doctors fused her skull and the six vertebrae
in her neck. This is not her first surgery. Hopefully, the fusion will straighten
her neck and prevent her from developing any more instability.
Her parents are hoping
to find some organization to help them with flights from Atlanta
to Philadelphia for Mattie's treatments and check ups. If you can
help in that area, please contact Mattie's family.
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