Date of Birth: 4-28-00
Main Diagnosis: Klippel Feil Syndrome (fusion of cervical
Featured on: June 2004
Parents: Stephen & Shelly
Siblings:Alyssa (2-27-98) and James (1-22-02)
Mattie was diagnosed with Klippel Feil
Syndrome, (fusion of cervical vertebrae) at six months old. She
has unilateral hearing loss, and wears a hearing aid.
This past April (2004) Mattie had spinal surgery at the Shriners'
Hospital in Philadelphia. Doctors fused her skull and the six vertebrae
in her neck. This is her second surgery this year. It will straighten
her neck and prevent her from developing any more instability.
Mattie will need to wear a "halo" at least through December.
The exact time will depend upon how quickly her body heals afte
Her parents believe Mattie's involvement with HUGS and HOPE will
help make her time in the halo more enjoyable. They are also hoping
to find some organization to help them with flights from Atlanta
to Philadelphia for Mattie's treatments and check ups. If you can
help in that area, please contact Mattie's family.
For email and snail mail addresses, personal web site URL, medical
fund information, and a current list of interests and hobbies, visit
our "Kids List" page.
Your help is necessary to widen our circle
of love and support for families facing the illness of a child. If you
are touched by our website and believe in our mission, please consider
donating your time, talents, or resources.