Jordan is in constant pain from a congenital hip problem. His mom tells his story in her own words:

After almost a year of seeing doctors and having his information passed between doctors and teaching hospitals, he was finally diagnosed with Multiplt Epiphyseal Dysplasia (painful growth or malformation of all long bones in his skeleton) witch is centering in his growth plates in his pelvis.

This bone disease has caused some stunting of his growth leaving him only 4'3 at 12 1/2(6-10 inch deficit of normal boy) and causing him intractable pain on a daily basis. He has had 4 bilateral hip surgeries either to do some correction or rotation, the last being when he was 9.

He is not done by a  long shot as the bone disease progressively gets worse as he gets older. He is looking at bilateral hip replacement surgery in the future but we are prolonging the inevitable. He cannot walk for very long distances, cannot play ANY contact sports or even skateboard (which he is a HUGE fan of!).

For Jordan's email and snail mail addresses, personal web site URL, medical fund information, and a current list of his interests and hobbies, visit our "Kids List" page.

For CURRENT UPDATES on Jordan's physical status, you may check in occasionally at our updates page.