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BRAEDON P.

Date of Birth: July 25, 2001

Main Diagnosis: Ataxia Telangiectasia; Lymphoma

Limitations:  Difficulty reading, walking, writing; tires easily

Featured: December 2009

Parents: Bernd & Jill

Siblings: Sister Caley (9-28-94)
Sister Corah (11-25-96)
Sister Cambria (5-28-99)



Braedon was born healthy and reached all milestones on target.  But by age four, his speech started to slur and his balance and coordination were impaired.  After almost two years of testing and doctor visits, a diagnosis was finally confirmed of Ataxia Telangiectasia (a nervous system and immune disorder).

In 2008, Braedon's parents noticed a swollen gland in Braedon's neck.  A biopsy showed B-cell Lymphoma.  After several rounds of chemotherapy, he is now in remission from the cancer; but he is deteriorating neurologically.  Walking is very difficult.  he is not able to write like he used to, and he tires easily. (Click each thumbnail below to enlarge)

               

But Braedon IS a typical eight year old!  He enjoys playing the things most boys his age do, like Gameboy DS and Wii.  He also likes Superman and Astro Boy.  He has difficulty reading, due to oculomotor apraxia; but he enjoys listening to age-appropriate books on tape or on CD.

    
 

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