Adam is a little brother to Andy  and Austin and a big brother to Phoebe. Andy and Austin are on the autism spectrum.

We noticed early on that Adam could not eat like my other babies and the left side of his face was droopy. They told us it was caused by a stroke and that he was doing well with therapies and would be fine.

For 2 years, this is what we were thinking.. Then around his 2nd birthday we noticed he started to seem "weaker" and "sluggish." We started going to Doctors at Children's Hospital, and they couldn't find anything wrong. I KNEW there was something going on somewhere.

From his 2nd birthday to 2-1/2.. he developed a heart murmur and the left side of his heart was slightly enlarged. Nothing the cardiologist was concerned about.. yet.. My gut kept telling me that there was just something NOT right with Adam..

Our pediatrician agreed and we pressed on by moving over to Cardinal Glennon's. They did further testing that led to doing a muscle biopsy. We have waited for a year for the diagnosis we have today.. Mitochondrial Myopathy Complexes I & IV..

So our days of "weakness" and pushing things around the house for support, and unexplained exhaustion are all explained now. . .  At this moment, we don't know much and we are just waiting to hear back from doctors to see what we are going to do. Adam suffers from a lot of tummy and leg pain.

Please send Adam a card.  He loves to receive mail!