When Chayce was six months old, he got a fever and was struggling
to have a bowel movement. Antibiotics and numerous visits to the
pediatrician were fruitless. The problem went on for months. At
ten months, Chayce began projectile vomiting and not eating anything.
Next, he got hives from head to toe. His pediatrician told Chayce's
mom, " I don't know to do for your son." He said Chayce
looked healthy and he suggested that Chayce's parents were not taking
proper care of him.
Chayce's parents tried two more doctors. An allergist determined
that Chayce was allergic to milk, soy, peanuts, and beans. Another
doctor took an endoscopy and discovered Chayce was suffering from
severe reflux. He prescribed medication, but Chayce now has a repulsion
to food and a texture disorder so he vomits when his mom tries to
give him medication or feed him.
In the meantime, Chayce was diagnosed with Eosinophilic Esophagitis
and he started swelling. EE is characterized by the abnormal accumulation
of white blood cells in the esophagus. A visit to the ER proved
that Chayce had no protein, calcium, magnesium, or phosphorus in
his body. Doctors wanted to give Chayce a feeding tube, but his
mom was determined to give him the formula by bottle. After much
effort (coaxing Chayce), she succeeded.
Drinking 64 ounces a day of an amino acid based formula, Chayce
had finally begun to gain weight, but he still suffered from Asthma
and continued to vomit and gets hives whenever he tried to eat food.
His formula (Elecare) is partially covered by medical insurance.
This helps because it costs $2100 a month! But Chayce's insurance
company has refused to pay for visits to an Eosinophilic Clinic.
Even with a letter from his doctor, the insurance company says the
treatment is not necessary! Meanwhile, Chayce's condition is worsening
once again. He is treated by an immunologist because his immune
system is not fighting off any invaders.
Below is a photo of Chayce with sister Savannah (born 5-28-99)
(click to enlarge)
For email and snail mail addresses, personal web site
URL, medical fund information, and a current list of interests and
hobbies, visit our "Kids List"
For CURRENT UPDATES visit our updates